Ethical, legal, and social issues (ELSI) in rare diseases: a landscape analysis from funders

Adam L. Hartman; Anneliene Hechtelt Jonker; Melissa A. Parisi; Daria Julkowska; Nicole Lockhart; Rosario Isasi

doi:10.1038/s41431-019-0513-3

Ethical, legal, and social issues (ELSI) in rare diseases: a landscape analysis from funders

Adam L. Hartman^*
, Anneliene Hechtelt Jonker
, Melissa A. Parisi
, Daria Julkowska
, Nicole Lockhart
, Rosario Isasi

^*Corresponding author for this work

Research output: Contribution to journal › Article › Academic › peer-review

15 Citations (Scopus)

Original language	English
Pages (from-to)	174-181
Journal	European journal of human genetics
Volume	28
DOIs	https://doi.org/10.1038/s41431-019-0513-3
Publication status	Published - Feb 2020
Externally published	Yes

Keywords

n/a OA procedure

Access to Document

10.1038/s41431-019-0513-3

Cite this

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title = "Ethical, legal, and social issues (ELSI) in rare diseases: a landscape analysis from funders",

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year = "2020",

month = feb,

doi = "10.1038/s41431-019-0513-3",

language = "English",

volume = "28",

pages = "174--181",

journal = "European journal of human genetics",

issn = "1018-4813",

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AU - Hartman, Adam L.

AU - Jonker, Anneliene Hechtelt

AU - Parisi, Melissa A.

AU - Julkowska, Daria

AU - Lockhart, Nicole

AU - Isasi, Rosario

PY - 2020/2

Y1 - 2020/2

KW - n/a OA procedure

U2 - 10.1038/s41431-019-0513-3

DO - 10.1038/s41431-019-0513-3

M3 - Article

SN - 1018-4813

VL - 28

SP - 174

EP - 181

JO - European journal of human genetics

JF - European journal of human genetics

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