TY - JOUR
T1 - Face and content validity of a holistic assessment questionnaire to assess cancer-related fatigue after breast cancer
AU - Wijlens, Kim A.E.
AU - Witteveen, Annemieke
AU - Beenhakker, Lian
AU - Siemerink, Ester J.M.
AU - Achterkamp, Reinoud
AU - Siesling, Sabine
AU - Vollenbroek-Hutten, Miriam M.R.
AU - Bode, Christina
N1 - Publisher Copyright:
© 2024 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group.
PY - 2024/10
Y1 - 2024/10
N2 - Background and objective: Cancer-related fatigue (CRF) affects the quality of life after breast cancer. In a previous study, we developed a 72-item questionnaire that assesses CRF from a holistic point of view; named the Holistic Assessment of CRF (HA-CRF) questionnaire. The current study assessed the face and content validity of the HA-CRF questionnaire.Methods: Using a mixed-method approach, ten breast cancer survivors (BCS) did a cognitive walkthrough of the HA-CRF via an app followed by a semi-structured interview about relevancy and essentiality (qualitative). In addition, ten health care professionals (HCPs) assessed the relevancy, clarity, and essentiality of each item via a questionnaire (quantitative).Results: BCS indicated minor textual improvement for four items and six items were not completely clear. The app was considered easy to use and the HC-CRF was on average completed in 18 minutes. The HA-CRF questionnaire provided openness about fatigue and gave the feeling of being heard. The items were helpful and induced self-awareness. HCPs indicated 71% of items being very clear or minor revisions proposed by the minority, with 64% of items being essential and 92% considered relevant.Conclusions: The HA-CRF showed good face and excellent content validity. Further research is needed to assess its ability to monitor in daily life.
AB - Background and objective: Cancer-related fatigue (CRF) affects the quality of life after breast cancer. In a previous study, we developed a 72-item questionnaire that assesses CRF from a holistic point of view; named the Holistic Assessment of CRF (HA-CRF) questionnaire. The current study assessed the face and content validity of the HA-CRF questionnaire.Methods: Using a mixed-method approach, ten breast cancer survivors (BCS) did a cognitive walkthrough of the HA-CRF via an app followed by a semi-structured interview about relevancy and essentiality (qualitative). In addition, ten health care professionals (HCPs) assessed the relevancy, clarity, and essentiality of each item via a questionnaire (quantitative).Results: BCS indicated minor textual improvement for four items and six items were not completely clear. The app was considered easy to use and the HC-CRF was on average completed in 18 minutes. The HA-CRF questionnaire provided openness about fatigue and gave the feeling of being heard. The items were helpful and induced self-awareness. HCPs indicated 71% of items being very clear or minor revisions proposed by the minority, with 64% of items being essential and 92% considered relevant.Conclusions: The HA-CRF showed good face and excellent content validity. Further research is needed to assess its ability to monitor in daily life.
KW - UT-Hybrid-D
KW - Holistic monitoring
KW - Mixed method
KW - Personalized care
KW - Survivorship
KW - Cancer-related fatigue
UR - http://www.scopus.com/inward/record.url?scp=85201542597&partnerID=8YFLogxK
U2 - 10.1080/21641846.2024.2389007
DO - 10.1080/21641846.2024.2389007
M3 - Article
AN - SCOPUS:85201542597
SN - 2164-1846
VL - 12
SP - 293
EP - 307
JO - Fatigue: Biomedicine, Health and Behavior
JF - Fatigue: Biomedicine, Health and Behavior
IS - 4
ER -