Abstract
This paper presents a systematic review of online health communities (OHCs) published between 2009 and 2020 in the ACM Digital Library. Aiming to consolidate the current issues, design knowledge, challenges, and tensions in OHCs, our analysis identified four high-level aspects related to the use and design of OHCs: (1) temporal: OHCs as transition spaces, (2) spatial: bridging experiential knowledge with medical expertise, (3) technological: exchanging and locating peer support, and (4) tension dimensions in OHCs. We further discuss methodological improvements and computing opportunities for OHC research and how to increase OHC members’ agency in such a medically dominated context. These findings have the potential to inform future OHC designs and help researchers and designers position future contributions.
Original language | English |
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Title of host publication | DIS '21 |
Subtitle of host publication | Proceedings of the 2021 ACM Designing Interactive Systems Conference |
Editors | Wendy Ju, Lora Oehlberg, Sean Follmer, Sarah Fox, Stacey Kuznetsov |
Place of Publication | New York, NY, United States |
Publisher | ACM Press |
Pages | 970-983 |
Number of pages | 14 |
ISBN (Print) | 978-1-4503-8476-6 |
DOIs | |
Publication status | Published - 28 Jun 2021 |
Externally published | Yes |
Event | ACM Designing Interactive Systems Conference: Nowhere and Everywhere, DIS 2021 - Virtual, Online, United States Duration: 28 Jun 2021 → 2 Jul 2021 |
Conference
Conference | ACM Designing Interactive Systems Conference |
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Abbreviated title | DIS 2021 |
Country/Territory | United States |
City | Virtual, Online |
Period | 28/06/21 → 2/07/21 |
Keywords
- n/a OA procedure
- systematic review
- social computing
- information management
- peer support
- support seeking
- transitions
- ubiquitous health
- digital health
- health communication
- online health communities