How HCI Bridges Health and Design in Online Health Communities: A Systematic Review

Doğa Gatos*, Aslı Günay, Güncel Kırlangıç, Kemal Kuscu, Asim Evren Yantac

*Corresponding author for this work

Research output: Chapter in Book/Report/Conference proceedingConference contributionAcademicpeer-review

11 Citations (Scopus)


This paper presents a systematic review of online health communities (OHCs) published between 2009 and 2020 in the ACM Digital Library. Aiming to consolidate the current issues, design knowledge, challenges, and tensions in OHCs, our analysis identified four high-level aspects related to the use and design of OHCs: (1) temporal: OHCs as transition spaces, (2) spatial: bridging experiential knowledge with medical expertise, (3) technological: exchanging and locating peer support, and (4) tension dimensions in OHCs. We further discuss methodological improvements and computing opportunities for OHC research and how to increase OHC members’ agency in such a medically dominated context. These findings have the potential to inform future OHC designs and help researchers and designers position future contributions.
Original languageEnglish
Title of host publicationDIS '21
Subtitle of host publicationProceedings of the 2021 ACM Designing Interactive Systems Conference
EditorsWendy Ju, Lora Oehlberg, Sean Follmer, Sarah Fox, Stacey Kuznetsov
Place of PublicationNew York, NY, United States
PublisherACM Press
Number of pages14
ISBN (Print)978-1-4503-8476-6
Publication statusE-pub ahead of print/First online - 28 Jun 2021
Externally publishedYes
EventACM Designing Interactive Systems Conference: Nowhere and Everywhere, DIS 2021 - Virtual, Online, United States
Duration: 28 Jun 20212 Jul 2021


ConferenceACM Designing Interactive Systems Conference
Abbreviated titleDIS 2021
Country/TerritoryUnited States
CityVirtual, Online


  • n/a OA procedure
  • systematic review
  • social computing
  • information management
  • peer support
  • support seeking
  • transitions
  • ubiquitous health
  • digital health
  • health communication
  • online health communities


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