Information for action: Building a unified European Cancer Information System to bolster cancer control

Milena Sant, Riccardo Capocaccia, David Forman, Stefano Rosso, Annalisa Trama, Sabine Siesling, Renée Otter, Camilla Amati, Francesco De Lorenzo

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    Abstract

    - Relevant information on cancer is available, but its organisation and
    harmonisation is necessary to make it usable for health planners, doctors,
    patients and other stakeholders.
    - Cancer registries should be at the core of a European Cancer Information
    System (ECIS), providing basic cancer indicators on incidence, survival,
    prevalence and patterns of care but these data need to be systematically
    linked to clinical, socioeconomic and population data.
    - The first step towards an ECIS, the harmonisation of incidence and survival
    data, has been taken during EPAAC in order to update European cancer
    data and construct a common database computing incidence, survival and
    prevalence data.
    - Specific conditions for data use still need to be considered, regulating
    confidentiality and ownership.
    Original languageEnglish
    Title of host publicationBoosting Innovation and Cooperation in Eureopean Cancer Control
    Subtitle of host publicationKey Findings form the European Partnership for Action Against Cancer
    EditorsJose M. Martin-Moreno, Tit Albreht, Sandra Rados Krnel
    PublisherNational Institute of Public Health of the Republic of Slovenia
    Chapter6
    Pages141-178
    ISBN (Print)978-961-6911-22-1
    Publication statusPublished - 2013

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  • Cite this

    Sant, M., Capocaccia, R., Forman, D., Rosso, S., Trama, A., Siesling, S., ... De Lorenzo, F. (2013). Information for action: Building a unified European Cancer Information System to bolster cancer control. In J. M. Martin-Moreno, T. Albreht, & S. Rados Krnel (Eds.), Boosting Innovation and Cooperation in Eureopean Cancer Control: Key Findings form the European Partnership for Action Against Cancer (pp. 141-178). National Institute of Public Health of the Republic of Slovenia.