Abstract
- Relevant information on cancer is available, but its organisation and
harmonisation is necessary to make it usable for health planners, doctors,
patients and other stakeholders.
- Cancer registries should be at the core of a European Cancer Information
System (ECIS), providing basic cancer indicators on incidence, survival,
prevalence and patterns of care but these data need to be systematically
linked to clinical, socioeconomic and population data.
- The first step towards an ECIS, the harmonisation of incidence and survival
data, has been taken during EPAAC in order to update European cancer
data and construct a common database computing incidence, survival and
prevalence data.
- Specific conditions for data use still need to be considered, regulating
confidentiality and ownership.
harmonisation is necessary to make it usable for health planners, doctors,
patients and other stakeholders.
- Cancer registries should be at the core of a European Cancer Information
System (ECIS), providing basic cancer indicators on incidence, survival,
prevalence and patterns of care but these data need to be systematically
linked to clinical, socioeconomic and population data.
- The first step towards an ECIS, the harmonisation of incidence and survival
data, has been taken during EPAAC in order to update European cancer
data and construct a common database computing incidence, survival and
prevalence data.
- Specific conditions for data use still need to be considered, regulating
confidentiality and ownership.
| Original language | English |
|---|---|
| Title of host publication | Boosting Innovation and Cooperation in Eureopean Cancer Control |
| Subtitle of host publication | Key Findings form the European Partnership for Action Against Cancer |
| Editors | Jose M. Martin-Moreno, Tit Albreht, Sandra Rados Krnel |
| Publisher | National Institute of Public Health of the Republic of Slovenia |
| Chapter | 6 |
| Pages | 141-178 |
| ISBN (Print) | 978-961-6911-22-1 |
| Publication status | Published - 2013 |
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Cite this
Sant, M., Capocaccia, R., Forman, D., Rosso, S., Trama, A., Siesling, S., ... De Lorenzo, F. (2013). Information for action: Building a unified European Cancer Information System to bolster cancer control. In J. M. Martin-Moreno, T. Albreht, & S. Rados Krnel (Eds.), Boosting Innovation and Cooperation in Eureopean Cancer Control: Key Findings form the European Partnership for Action Against Cancer (pp. 141-178). National Institute of Public Health of the Republic of Slovenia.