Information for action: Building a unified European Cancer Information System to bolster cancer control

Milena Sant; Riccardo Capocaccia; David Forman; Stefano Rosso; Annalisa Trama; Sabine  Siesling; Renée Otter; Camilla Amati; Francesco De Lorenzo

Information for action: Building a unified European Cancer Information System to bolster cancer control

Milena Sant
, Riccardo Capocaccia
, David Forman
, Stefano Rosso
, Annalisa Trama
, Sabine Siesling
, Renée Otter
, Camilla Amati
, Francesco De Lorenzo

Research output: Chapter in Book/Report/Conference proceeding › Chapter › Academic › peer-review

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Abstract

- Relevant information on cancer is available, but its organisation and
harmonisation is necessary to make it usable for health planners, doctors,
patients and other stakeholders.
- Cancer registries should be at the core of a European Cancer Information
System (ECIS), providing basic cancer indicators on incidence, survival,
prevalence and patterns of care but these data need to be systematically
linked to clinical, socioeconomic and population data.
- The first step towards an ECIS, the harmonisation of incidence and survival
data, has been taken during EPAAC in order to update European cancer
data and construct a common database computing incidence, survival and
prevalence data.
- Specific conditions for data use still need to be considered, regulating
confidentiality and ownership.

Original language	English
Title of host publication	Boosting Innovation and Cooperation in Eureopean Cancer Control
Subtitle of host publication	Key Findings form the European Partnership for Action Against Cancer
Editors	Jose M. Martin-Moreno, Tit Albreht, Sandra Rados Krnel
Publisher	National Institute of Public Health of the Republic of Slovenia
Chapter	6
Pages	141-178
ISBN (Print)	978-961-6911-22-1
Publication status	Published - 2013
Externally published	Yes

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

SDG 3 Good Health and Well-being

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Sant, M., Capocaccia, R., Forman, D., Rosso, S., Trama, A., Siesling, S., Otter, R., Amati, C., & De Lorenzo, F. (2013). Information for action: Building a unified European Cancer Information System to bolster cancer control. In J. M. Martin-Moreno, T. Albreht, & S. Rados Krnel (Eds.), Boosting Innovation and Cooperation in Eureopean Cancer Control: Key Findings form the European Partnership for Action Against Cancer (pp. 141-178). National Institute of Public Health of the Republic of Slovenia.

Sant, Milena ; Capocaccia, Riccardo ; Forman, David et al. / Information for action : Building a unified European Cancer Information System to bolster cancer control. Boosting Innovation and Cooperation in Eureopean Cancer Control: Key Findings form the European Partnership for Action Against Cancer. editor / Jose M. Martin-Moreno ; Tit Albreht ; Sandra Rados Krnel. National Institute of Public Health of the Republic of Slovenia, 2013. pp. 141-178

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abstract = "- Relevant information on cancer is available, but its organisation and harmonisation is necessary to make it usable for health planners, doctors, patients and other stakeholders. - Cancer registries should be at the core of a European Cancer Information System (ECIS), providing basic cancer indicators on incidence, survival, prevalence and patterns of care but these data need to be systematically linked to clinical, socioeconomic and population data. - The first step towards an ECIS, the harmonisation of incidence and survival data, has been taken during EPAAC in order to update European cancer data and construct a common database computing incidence, survival and prevalence data. - Specific conditions for data use still need to be considered, regulating confidentiality and ownership.",

author = "Milena Sant and Riccardo Capocaccia and David Forman and Stefano Rosso and Annalisa Trama and Sabine Siesling and Ren{\'e}e Otter and Camilla Amati and \{De Lorenzo\}, Francesco",

year = "2013",

language = "English",

isbn = "978-961-6911-22-1",

pages = "141--178",

editor = "Martin-Moreno, \{Jose M.\} and Tit Albreht and \{Rados Krnel\}, Sandra",

booktitle = "Boosting Innovation and Cooperation in Eureopean Cancer Control",

publisher = "National Institute of Public Health of the Republic of Slovenia",

address = "Slovenia",

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Sant, M, Capocaccia, R, Forman, D, Rosso, S, Trama, A, Siesling, S, Otter, R, Amati, C & De Lorenzo, F 2013, Information for action: Building a unified European Cancer Information System to bolster cancer control. in JM Martin-Moreno, T Albreht & S Rados Krnel (eds), Boosting Innovation and Cooperation in Eureopean Cancer Control: Key Findings form the European Partnership for Action Against Cancer. National Institute of Public Health of the Republic of Slovenia, pp. 141-178.

Information for action: Building a unified European Cancer Information System to bolster cancer control. / Sant, Milena; Capocaccia, Riccardo; Forman, David et al.
Boosting Innovation and Cooperation in Eureopean Cancer Control: Key Findings form the European Partnership for Action Against Cancer. ed. / Jose M. Martin-Moreno; Tit Albreht; Sandra Rados Krnel. National Institute of Public Health of the Republic of Slovenia, 2013. p. 141-178.

Research output: Chapter in Book/Report/Conference proceeding › Chapter › Academic › peer-review

TY - CHAP

T1 - Information for action

T2 - Building a unified European Cancer Information System to bolster cancer control

AU - Sant, Milena

AU - Capocaccia, Riccardo

AU - Forman, David

AU - Rosso, Stefano

AU - Trama, Annalisa

AU - Siesling, Sabine

AU - Otter, Renée

AU - Amati, Camilla

AU - De Lorenzo, Francesco

PY - 2013

Y1 - 2013

N2 - - Relevant information on cancer is available, but its organisation and harmonisation is necessary to make it usable for health planners, doctors, patients and other stakeholders. - Cancer registries should be at the core of a European Cancer Information System (ECIS), providing basic cancer indicators on incidence, survival, prevalence and patterns of care but these data need to be systematically linked to clinical, socioeconomic and population data. - The first step towards an ECIS, the harmonisation of incidence and survival data, has been taken during EPAAC in order to update European cancer data and construct a common database computing incidence, survival and prevalence data. - Specific conditions for data use still need to be considered, regulating confidentiality and ownership.

AB - - Relevant information on cancer is available, but its organisation and harmonisation is necessary to make it usable for health planners, doctors, patients and other stakeholders. - Cancer registries should be at the core of a European Cancer Information System (ECIS), providing basic cancer indicators on incidence, survival, prevalence and patterns of care but these data need to be systematically linked to clinical, socioeconomic and population data. - The first step towards an ECIS, the harmonisation of incidence and survival data, has been taken during EPAAC in order to update European cancer data and construct a common database computing incidence, survival and prevalence data. - Specific conditions for data use still need to be considered, regulating confidentiality and ownership.

M3 - Chapter

SN - 978-961-6911-22-1

SP - 141

EP - 178

BT - Boosting Innovation and Cooperation in Eureopean Cancer Control

A2 - Martin-Moreno, Jose M.

A2 - Albreht, Tit

A2 - Rados Krnel, Sandra

PB - National Institute of Public Health of the Republic of Slovenia

ER -

Sant M, Capocaccia R, Forman D, Rosso S, Trama A, Siesling S et al. Information for action: Building a unified European Cancer Information System to bolster cancer control. In Martin-Moreno JM, Albreht T, Rados Krnel S, editors, Boosting Innovation and Cooperation in Eureopean Cancer Control: Key Findings form the European Partnership for Action Against Cancer. National Institute of Public Health of the Republic of Slovenia. 2013. p. 141-178

Information for action: Building a unified European Cancer Information System to bolster cancer control

Abstract

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