Krebsregistrierung in Europa

Translated title of the contribution: Cancer registration in Europe

Volker Arndt*, Sabine Siesling

*Corresponding author for this work

Research output: Contribution to journalArticleAcademicpeer-review

Abstract

Background: Cancer registries have been established in Europe since the 1950s. This paper provides an overview of the status and structures of cancer registration in Europe. Materials and methods: A narrative review was conducted based on the activities of the European Network for Cancer Registries (ENCR), the European Cancer Information System (ECIS), and other relevant publications. Results: Over 180 population-based cancer registries have been established within the European region to date. The incidence of cancer is now systematically recorded in almost all European countries at a regional and sometimes national level. Data on cancer incidence and mortality in Europe are published by the ECIS and others. However, the degree of national coverage, up-to-dateness, and range of registered items as well as data sources and pathways differ, which limits comparability and pooled evaluations. The ENCR promotes cooperation between cancer registries and publishes epidemiological factsheets, standards, and recommendations for cancer registration and offers training to further harmonize cancer registration within Europe. Conclusion: Although coverage is increasing, approximately one third of the population in Europe, especially in regions with limited resources, is not yet covered by population-based cancer registration. In view of international comparability and the European Health Data Space, efforts are needed for further data harmonization and provision of timely data, and to overcome obstacles caused by the European General Data Protection Regulation, e.g., by federated analysis.

Translated title of the contributionCancer registration in Europe
Original languageGerman
Pages (from-to)245-256
Number of pages12
JournalDie Onkologie
Volume30
Issue number4
Early online date18 Dec 2023
DOIs
Publication statusPublished - Apr 2024

Keywords

  • 2023 OA procedure

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