Multilevel privacy assurance evaluation of healthcare metadata

Syeda Amna Sohail*, Faiza Allah Bukhsh, Maurice van Keulen

*Corresponding author for this work

Research output: Contribution to journalSpecial issueAcademicpeer-review

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Abstract

Healthcare providers are legally bound to ensure the privacy preservation of healthcare metadata. Usually, privacy concerning research focuses on providing technical and inter-/intra-organizational solutions in a fragmented manner. In this wake, an overarching evaluation of the fundamental (technical, organizational, and third-party) privacy-preserving measures in healthcare metadata handling is missing. Thus, this research work provides a multilevel privacy assurance evaluation of privacy-preserving measures of the Dutch healthcare metadata landscape. The normative and empirical evaluation comprises the content analysis and process mining discovery and conformance checking techniques using real-world healthcare datasets. For clarity, we illustrate our evaluation findings using conceptual modeling frameworks, namely e3-value modeling and REA ontology. The conceptual modeling frameworks highlight the financial aspect of metadata share with a clear description of vital stakeholders, their mutual interactions, and respective exchange of information resources. The frameworks are further verified using experts’ opinions. Based on our empirical and normative evaluations, we provide the multilevel privacy assurance evaluation with a level of privacy increase and decrease. Furthermore, we verify that the privacy utility trade-off is crucial in shaping privacy increase/decrease because data utility in healthcare is vital for efficient, effective healthcare services and the financial facilitation of healthcare enterprises.
Original languageEnglish
Article number10686
Number of pages34
JournalProceedings (MDPI)
Volume11
Issue number22
DOIs
Publication statusPublished - 12 Nov 2021

Keywords

  • Healthcare
  • E3-value modeling
  • REA ontology
  • Privacy–utility trade-off
  • Process mining
  • UT-Gold-D

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