Parents’ decision for helmet therapy in infants with skull deformation

Research output: Contribution to journalArticleAcademicpeer-review

3 Citations (Scopus)

Abstract

Purpose Helmet therapy is regularly prescribed in infants with positional skull deformation. Evidence on the effectiveness is lacking, which complicates decision making. This study aims to assess the relation between parents’ decision for treatment of skull deformation in their infant and their level of anxiety, decisional conflict, expectations of treatment effect, perceived severity of deformation and perceived side effects. Methods Parents of 5-month-old infants with skull deformation were invited to participate in a survey. Data collection included background characteristics, anthropometric assessment, parent-reported outcomes, decision for treatment (helmet therapy or awaiting natural course), decisional conflict scale and questions about perceived (side) effects of helmet therapy. Factors significantly correlated with treatment decision (p < 0.1) were tested in a multiple logistic regression analysis. Results The results of 186 respondents were included in the analysis. Parental satisfaction with their infant’s head shape (adjusted odds ratio (aOR) 0.2; 95 % confidence interval (CI) 0.1 to 0.4), expected effect of helmet therapy compared to natural course (aOR 13.4; 95 % CI 5.0 to 36.1) and decision uncertainty (aOR 1.0; 95 % CI 0.9 to 1.0; p = .03) were related to the decision for helmet therapy in infants with skull deformation. Conclusion With the outcomes of this study, we can better understand parental decision-making for elective ‘normalizing’ treatments in children, such as helmet therapy in infants with skull deformation. Health care professionals should address the parents’ perception of the severity of skull deformation and their expectations of helmet therapy. Furthermore, they can support parents in decision-making by balancing medical information with parents’ expectations, values and beliefs
Original languageEnglish
Pages (from-to)1225-1232
JournalChild's nervous system
Volume30
Issue number7
DOIs
Publication statusPublished - 19 Mar 2014

Fingerprint

Head Protective Devices
Skull
Parents
Therapeutics
Odds Ratio
Confidence Intervals
Decision Making
Uncertainty
Anxiety
Logistic Models
Head
Regression Analysis
Outcome Assessment (Health Care)

Keywords

  • IR-90446
  • METIS-303310

Cite this

@article{0122159a651b44d6a364d830370792f3,
title = "Parents’ decision for helmet therapy in infants with skull deformation",
abstract = "Purpose Helmet therapy is regularly prescribed in infants with positional skull deformation. Evidence on the effectiveness is lacking, which complicates decision making. This study aims to assess the relation between parents’ decision for treatment of skull deformation in their infant and their level of anxiety, decisional conflict, expectations of treatment effect, perceived severity of deformation and perceived side effects. Methods Parents of 5-month-old infants with skull deformation were invited to participate in a survey. Data collection included background characteristics, anthropometric assessment, parent-reported outcomes, decision for treatment (helmet therapy or awaiting natural course), decisional conflict scale and questions about perceived (side) effects of helmet therapy. Factors significantly correlated with treatment decision (p < 0.1) were tested in a multiple logistic regression analysis. Results The results of 186 respondents were included in the analysis. Parental satisfaction with their infant’s head shape (adjusted odds ratio (aOR) 0.2; 95 {\%} confidence interval (CI) 0.1 to 0.4), expected effect of helmet therapy compared to natural course (aOR 13.4; 95 {\%} CI 5.0 to 36.1) and decision uncertainty (aOR 1.0; 95 {\%} CI 0.9 to 1.0; p = .03) were related to the decision for helmet therapy in infants with skull deformation. Conclusion With the outcomes of this study, we can better understand parental decision-making for elective ‘normalizing’ treatments in children, such as helmet therapy in infants with skull deformation. Health care professionals should address the parents’ perception of the severity of skull deformation and their expectations of helmet therapy. Furthermore, they can support parents in decision-making by balancing medical information with parents’ expectations, values and beliefs",
keywords = "IR-90446, METIS-303310",
author = "{van Wijk}, Renske and {van Til}, {Janine Astrid} and Groothuis-Oudshoorn, {Catharina Gerarda Maria} and L'Hoir, {Monique P.} and Boere-Boonekamp, {Magdalena M.} and IJzerman, {Maarten Joost}",
year = "2014",
month = "3",
day = "19",
doi = "10.1007/s00381-014-2399-2",
language = "English",
volume = "30",
pages = "1225--1232",
journal = "Child's nervous system",
issn = "0256-7040",
publisher = "Springer",
number = "7",

}

Parents’ decision for helmet therapy in infants with skull deformation. / van Wijk, Renske; van Til, Janine Astrid; Groothuis-Oudshoorn, Catharina Gerarda Maria; L'Hoir, Monique P.; Boere-Boonekamp, Magdalena M.; IJzerman, Maarten Joost.

In: Child's nervous system, Vol. 30, No. 7, 19.03.2014, p. 1225-1232.

Research output: Contribution to journalArticleAcademicpeer-review

TY - JOUR

T1 - Parents’ decision for helmet therapy in infants with skull deformation

AU - van Wijk, Renske

AU - van Til, Janine Astrid

AU - Groothuis-Oudshoorn, Catharina Gerarda Maria

AU - L'Hoir, Monique P.

AU - Boere-Boonekamp, Magdalena M.

AU - IJzerman, Maarten Joost

PY - 2014/3/19

Y1 - 2014/3/19

N2 - Purpose Helmet therapy is regularly prescribed in infants with positional skull deformation. Evidence on the effectiveness is lacking, which complicates decision making. This study aims to assess the relation between parents’ decision for treatment of skull deformation in their infant and their level of anxiety, decisional conflict, expectations of treatment effect, perceived severity of deformation and perceived side effects. Methods Parents of 5-month-old infants with skull deformation were invited to participate in a survey. Data collection included background characteristics, anthropometric assessment, parent-reported outcomes, decision for treatment (helmet therapy or awaiting natural course), decisional conflict scale and questions about perceived (side) effects of helmet therapy. Factors significantly correlated with treatment decision (p < 0.1) were tested in a multiple logistic regression analysis. Results The results of 186 respondents were included in the analysis. Parental satisfaction with their infant’s head shape (adjusted odds ratio (aOR) 0.2; 95 % confidence interval (CI) 0.1 to 0.4), expected effect of helmet therapy compared to natural course (aOR 13.4; 95 % CI 5.0 to 36.1) and decision uncertainty (aOR 1.0; 95 % CI 0.9 to 1.0; p = .03) were related to the decision for helmet therapy in infants with skull deformation. Conclusion With the outcomes of this study, we can better understand parental decision-making for elective ‘normalizing’ treatments in children, such as helmet therapy in infants with skull deformation. Health care professionals should address the parents’ perception of the severity of skull deformation and their expectations of helmet therapy. Furthermore, they can support parents in decision-making by balancing medical information with parents’ expectations, values and beliefs

AB - Purpose Helmet therapy is regularly prescribed in infants with positional skull deformation. Evidence on the effectiveness is lacking, which complicates decision making. This study aims to assess the relation between parents’ decision for treatment of skull deformation in their infant and their level of anxiety, decisional conflict, expectations of treatment effect, perceived severity of deformation and perceived side effects. Methods Parents of 5-month-old infants with skull deformation were invited to participate in a survey. Data collection included background characteristics, anthropometric assessment, parent-reported outcomes, decision for treatment (helmet therapy or awaiting natural course), decisional conflict scale and questions about perceived (side) effects of helmet therapy. Factors significantly correlated with treatment decision (p < 0.1) were tested in a multiple logistic regression analysis. Results The results of 186 respondents were included in the analysis. Parental satisfaction with their infant’s head shape (adjusted odds ratio (aOR) 0.2; 95 % confidence interval (CI) 0.1 to 0.4), expected effect of helmet therapy compared to natural course (aOR 13.4; 95 % CI 5.0 to 36.1) and decision uncertainty (aOR 1.0; 95 % CI 0.9 to 1.0; p = .03) were related to the decision for helmet therapy in infants with skull deformation. Conclusion With the outcomes of this study, we can better understand parental decision-making for elective ‘normalizing’ treatments in children, such as helmet therapy in infants with skull deformation. Health care professionals should address the parents’ perception of the severity of skull deformation and their expectations of helmet therapy. Furthermore, they can support parents in decision-making by balancing medical information with parents’ expectations, values and beliefs

KW - IR-90446

KW - METIS-303310

U2 - 10.1007/s00381-014-2399-2

DO - 10.1007/s00381-014-2399-2

M3 - Article

VL - 30

SP - 1225

EP - 1232

JO - Child's nervous system

JF - Child's nervous system

SN - 0256-7040

IS - 7

ER -