Patient Journey Value Mapping: Illustrating values and experiences along the patient journey to support eHealth design

Michael Bui; Kira Oberschmidt; Christiane Grünloh

doi:10.1145/3603555.3603558

Patient Journey Value Mapping: Illustrating values and experiences along the patient journey to support eHealth design

Michael Bui, Kira Oberschmidt, Christiane Grünloh

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › Academic › peer-review

4 Citations (Scopus)

123 Downloads (Pure)

Abstract

This paper introduces patient journey value mapping – an approach to capture experiences, emotions and values implicated in patients’ care delivery. As patients’ values (i.e., what’s important to them in their lives) may change along their patient journeys, our approach aims to support designers to respond to patients’ changing needs in the (re)design of eHealth, by mapping patients’ values and their prioritisations over time. To substantiate the creation of the map, we propose two preceding data collection phases comprising complementary empirical methods. First, important care-related events and associated values are collected retrospectively through interviews, and in-situ through diary studies. Subsequently, the data are analysed to develop materials to elicit values and value tensions through deepening discussions in an interactive workshop based on which the maps are finalised. The approach is illustrated through discussions and reflections on its application in a case study investigating patient values in eHealth for rehabilitation care.

Original language	English
Title of host publication	MuC '23: Proceedings of Mensch und Computer 2023
Editors	Markus Stolze, Frieder Loch, Matthias Baldauf, Florian Alt, Christina Schneegass, Thomas Kosch, Teresa Hirzle, Shadan Sadeghian, Fiona Draxler, Kenan Bektas, Katrin Lohan, Pascal Knierim
Place of Publication	New York, NY, USA
Publisher	Association for Computing Machinery
Pages	49-66
Number of pages	18
ISBN (Electronic)	979-8-4007-0771-1
DOIs	https://doi.org/10.1145/3603555.3603558
Publication status	Published - 3 Sept 2023
Event	Mensch und Computer, MuC 2023 - Zürichsee, Switzerland Duration: 3 Sept 2023 → 6 Sept 2023 https://muc2023.mensch-und-computer.de/en/

Conference

Conference	Mensch und Computer, MuC 2023
Abbreviated title	MuC 2023
Country/Territory	Switzerland
City	Zürichsee
Period	3/09/23 → 6/09/23
Internet address	https://muc2023.mensch-und-computer.de/en/

Keywords

patient journey map
value sensitive design
design method
user experience design

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

Access to Document

10.1145/3603555.3603558Licence: CC BY

3603555.3603558Final published version, 3.24 MBLicence: CC BY

Cite this

Bui, M., Oberschmidt, K., & Grünloh, C. (2023). Patient Journey Value Mapping: Illustrating values and experiences along the patient journey to support eHealth design. In M. Stolze, F. Loch, M. Baldauf, F. Alt, C. Schneegass, T. Kosch, T. Hirzle, S. Sadeghian, F. Draxler, K. Bektas, K. Lohan, & P. Knierim (Eds.), MuC '23: Proceedings of Mensch und Computer 2023 (pp. 49-66). Association for Computing Machinery. https://doi.org/10.1145/3603555.3603558

Bui, Michael ; Oberschmidt, Kira ; Grünloh, Christiane. / Patient Journey Value Mapping: Illustrating values and experiences along the patient journey to support eHealth design. MuC '23: Proceedings of Mensch und Computer 2023. editor / Markus Stolze ; Frieder Loch ; Matthias Baldauf ; Florian Alt ; Christina Schneegass ; Thomas Kosch ; Teresa Hirzle ; Shadan Sadeghian ; Fiona Draxler ; Kenan Bektas ; Katrin Lohan ; Pascal Knierim. New York, NY, USA : Association for Computing Machinery, 2023. pp. 49-66

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abstract = "This paper introduces patient journey value mapping – an approach to capture experiences, emotions and values implicated in patients{\textquoteright} care delivery. As patients{\textquoteright} values (i.e., what{\textquoteright}s important to them in their lives) may change along their patient journeys, our approach aims to support designers to respond to patients{\textquoteright} changing needs in the (re)design of eHealth, by mapping patients{\textquoteright} values and their prioritisations over time. To substantiate the creation of the map, we propose two preceding data collection phases comprising complementary empirical methods. First, important care-related events and associated values are collected retrospectively through interviews, and in-situ through diary studies. Subsequently, the data are analysed to develop materials to elicit values and value tensions through deepening discussions in an interactive workshop based on which the maps are finalised. The approach is illustrated through discussions and reflections on its application in a case study investigating patient values in eHealth for rehabilitation care.",

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note = "Funding Information: The study took place between July and November 2021 at Roess-ingh, a centre for rehabiliation care in Enschede, The Netherlands. Participants were recruited through their health care providers at the rehabilitation centre. According to Dutch law and supported by a ruling from the appropriate ethics committee (METC Oost-Nederland), no medical ethical approval was required for this research (ruling 2021-13032). All participants were provided with an information letter and gave their written informed consent prior to starting the study. Interviews and workshop were recorded, transcribed and together with the data from the diaries processed in coded form. Publisher Copyright: {\textcopyright} 2023 Owner/Author.; Mensch und Computer, MuC 2023 , MuC 2023 ; Conference date: 03-09-2023 Through 06-09-2023",

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Bui, M, Oberschmidt, K & Grünloh, C 2023, Patient Journey Value Mapping: Illustrating values and experiences along the patient journey to support eHealth design. in M Stolze, F Loch, M Baldauf, F Alt, C Schneegass, T Kosch, T Hirzle, S Sadeghian, F Draxler, K Bektas, K Lohan & P Knierim (eds), MuC '23: Proceedings of Mensch und Computer 2023. Association for Computing Machinery, New York, NY, USA, pp. 49-66, Mensch und Computer, MuC 2023 , Zürichsee, Switzerland, 3/09/23. https://doi.org/10.1145/3603555.3603558

Patient Journey Value Mapping: Illustrating values and experiences along the patient journey to support eHealth design. / Bui, Michael; Oberschmidt, Kira; Grünloh, Christiane.
MuC '23: Proceedings of Mensch und Computer 2023. ed. / Markus Stolze; Frieder Loch; Matthias Baldauf; Florian Alt; Christina Schneegass; Thomas Kosch; Teresa Hirzle; Shadan Sadeghian; Fiona Draxler; Kenan Bektas; Katrin Lohan; Pascal Knierim. New York, NY, USA: Association for Computing Machinery, 2023. p. 49-66.

Research output: Chapter in Book/Report/Conference proceeding › Conference contribution › Academic › peer-review

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N1 - Funding Information: The study took place between July and November 2021 at Roess-ingh, a centre for rehabiliation care in Enschede, The Netherlands. Participants were recruited through their health care providers at the rehabilitation centre. According to Dutch law and supported by a ruling from the appropriate ethics committee (METC Oost-Nederland), no medical ethical approval was required for this research (ruling 2021-13032). All participants were provided with an information letter and gave their written informed consent prior to starting the study. Interviews and workshop were recorded, transcribed and together with the data from the diaries processed in coded form. Publisher Copyright: © 2023 Owner/Author.

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N2 - This paper introduces patient journey value mapping – an approach to capture experiences, emotions and values implicated in patients’ care delivery. As patients’ values (i.e., what’s important to them in their lives) may change along their patient journeys, our approach aims to support designers to respond to patients’ changing needs in the (re)design of eHealth, by mapping patients’ values and their prioritisations over time. To substantiate the creation of the map, we propose two preceding data collection phases comprising complementary empirical methods. First, important care-related events and associated values are collected retrospectively through interviews, and in-situ through diary studies. Subsequently, the data are analysed to develop materials to elicit values and value tensions through deepening discussions in an interactive workshop based on which the maps are finalised. The approach is illustrated through discussions and reflections on its application in a case study investigating patient values in eHealth for rehabilitation care.

AB - This paper introduces patient journey value mapping – an approach to capture experiences, emotions and values implicated in patients’ care delivery. As patients’ values (i.e., what’s important to them in their lives) may change along their patient journeys, our approach aims to support designers to respond to patients’ changing needs in the (re)design of eHealth, by mapping patients’ values and their prioritisations over time. To substantiate the creation of the map, we propose two preceding data collection phases comprising complementary empirical methods. First, important care-related events and associated values are collected retrospectively through interviews, and in-situ through diary studies. Subsequently, the data are analysed to develop materials to elicit values and value tensions through deepening discussions in an interactive workshop based on which the maps are finalised. The approach is illustrated through discussions and reflections on its application in a case study investigating patient values in eHealth for rehabilitation care.

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KW - design method

KW - user experience design

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BT - MuC '23: Proceedings of Mensch und Computer 2023

A2 - Stolze, Markus

A2 - Loch, Frieder

A2 - Baldauf, Matthias

A2 - Alt, Florian

A2 - Schneegass, Christina

A2 - Kosch, Thomas

A2 - Hirzle, Teresa

A2 - Sadeghian, Shadan

A2 - Draxler, Fiona

A2 - Bektas, Kenan

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Bui M, Oberschmidt K, Grünloh C. Patient Journey Value Mapping: Illustrating values and experiences along the patient journey to support eHealth design. In Stolze M, Loch F, Baldauf M, Alt F, Schneegass C, Kosch T, Hirzle T, Sadeghian S, Draxler F, Bektas K, Lohan K, Knierim P, editors, MuC '23: Proceedings of Mensch und Computer 2023. New York, NY, USA: Association for Computing Machinery. 2023. p. 49-66 doi: 10.1145/3603555.3603558

Patient Journey Value Mapping: Illustrating values and experiences along the patient journey to support eHealth design

Abstract

Conference

Keywords

UN SDGs

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