TY - JOUR
T1 - Patients' experience of shoulder disorders
T2 - A systematic review of qualitative studies for the OMERACT Shoulder Core Domain Set
AU - Page, Matthew J.
AU - O'Connor, Denise A.
AU - Malek, Mary
AU - Haas, Romi
AU - Beaton, Dorcas
AU - Huang, Hsiaomin
AU - Ramiro, Sofia
AU - Richards, Pamela
AU - Voshaar, Marieke J.H.
AU - Shea, Beverley
AU - Verhagen, Arianne P.
AU - Whittle, Samuel L.
AU - Van Der Windt, Danielle A.
AU - Gagnier, Joel J.
AU - Buchbinder, Rachelle
N1 - Funding Information:
We thank Carol Payne (Norfolk and Norwich University Hospital) for providing us with unpublished data from her study. M.J.P. is supported by an Australian National Health and Medical Research Council (NHMRC) Early Career Fellowship. R.B. is supported by an Australian NHMRC Senior Principal Research Fellowship. The funders had no role in study design, data collection and analysis, decision to publish, or preparation of the manuscript. All authors declare to meet the ICMJE conditions for authorship. R.B. conceived the study design. M.J.P., D.A.O., D.B., D.A.v.d.W., J.J.G. and R.B. provided input into the study design. M.J.P. and M.M. selected studies for inclusion. M.J.P., D.A.O. and M.M. collected data from studies. M.J.P., R.H. and M.M. assessed the quality of studies. M.J.P. and R.H. assessed the confidence in review findings. M.J.P. and D.A.O. performed data coding and thematic synthesis, with contribution from R.B. M.J.P. wrote the first draft of the article. All authors contributed to revisions of the article. All authors approved the final version.
Publisher Copyright:
© 2019 The Author(s) 2019. Published by Oxford University Press on behalf of the British Society for Rheumatology. All rights reserved.
PY - 2019/8/1
Y1 - 2019/8/1
N2 - Objectives: To describe the experiences (including symptoms and perceived impacts on daily living) of people with a shoulder disorder.Methods: Systematic review of qualitative studies. We searched for eligible qualitative studies indexed in Ovid MEDLINE, Ovid Embase, CINAHL (EBSCO), SportDiscus (EBSCO) and Ovid PsycINFO up until November 2017. Two authors independently screened studies for inclusion, appraised their methodological quality using the Critical Appraisal Skills Programme checklist, used thematic synthesis methods to generate themes describing the experiences reported by participants and assessed the confidence in the findings using the Grading of Recommendations Assessment, Development and Evaluation Confidence in Evidence from Reviews of Qualitative research (GRADE-CERQual) approach.Results: The inclusion criteria were met by eight studies, which included 133 participants (49 females and 84 males) with either rotator cuff disease, adhesive capsulitis, proximal humeral fracture, shoulder instability or unspecified shoulder pain. We generated seven themes to describe what people in the included studies reported experiencing: pain; physical function/activity limitations; participation restriction; sleep disruption; cognitive dysfunction; emotional distress; and other pathophysiological manifestations (other than pain). There were interactions between the themes, with particular experiences impacting on others (e.g. pain leading to reduced activities and sleep disruption). Following grading of the evidence, we considered it likely that most of the review findings were a reasonable representation of the experiences of people with shoulder disorders.Conclusion: Patients with shoulder disorders contend with considerable disruption to their life. The experiences described should be considered by researchers seeking to select the most appropriate outcomes to measure in clinical trials and other research studies in people with shoulder disorders.
AB - Objectives: To describe the experiences (including symptoms and perceived impacts on daily living) of people with a shoulder disorder.Methods: Systematic review of qualitative studies. We searched for eligible qualitative studies indexed in Ovid MEDLINE, Ovid Embase, CINAHL (EBSCO), SportDiscus (EBSCO) and Ovid PsycINFO up until November 2017. Two authors independently screened studies for inclusion, appraised their methodological quality using the Critical Appraisal Skills Programme checklist, used thematic synthesis methods to generate themes describing the experiences reported by participants and assessed the confidence in the findings using the Grading of Recommendations Assessment, Development and Evaluation Confidence in Evidence from Reviews of Qualitative research (GRADE-CERQual) approach.Results: The inclusion criteria were met by eight studies, which included 133 participants (49 females and 84 males) with either rotator cuff disease, adhesive capsulitis, proximal humeral fracture, shoulder instability or unspecified shoulder pain. We generated seven themes to describe what people in the included studies reported experiencing: pain; physical function/activity limitations; participation restriction; sleep disruption; cognitive dysfunction; emotional distress; and other pathophysiological manifestations (other than pain). There were interactions between the themes, with particular experiences impacting on others (e.g. pain leading to reduced activities and sleep disruption). Following grading of the evidence, we considered it likely that most of the review findings were a reasonable representation of the experiences of people with shoulder disorders.Conclusion: Patients with shoulder disorders contend with considerable disruption to their life. The experiences described should be considered by researchers seeking to select the most appropriate outcomes to measure in clinical trials and other research studies in people with shoulder disorders.
KW - Outcome assessment
KW - Qualitative evidence synthesis
KW - Qualitative research
KW - Shoulder pain
KW - Systematic review
KW - n/a OA procedure
UR - http://www.scopus.com/inward/record.url?scp=85077215759&partnerID=8YFLogxK
U2 - 10.1093/rheumatology/kez046
DO - 10.1093/rheumatology/kez046
M3 - Article
C2 - 30843587
AN - SCOPUS:85077215759
SN - 1462-0324
VL - 58
SP - 1410
EP - 1421
JO - Rheumatology
JF - Rheumatology
IS - 8
ER -