Patients' Needs and Requirements for eHealth Pain Management Interventions: Qualitative Study

Ingrid Konstanse Ledel Solem, Cecilie Varsi, Hilde Eide, Olöf Birna Kristjansdottir, Jelena Mirkovic, Elin Børøsund, Mette Haaland-Øverby, Karina Heldal, Karlein Mg Schreurs, Lori B. Waxenberg, Karen Elizabeth Weiss, Eleshia J. Morrison, Lise Solberg Nes (Corresponding Author)

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    Abstract

    BACKGROUND: A growing body of evidence supports the potential effectiveness of electronic health (eHealth) interventions in managing chronic pain. However, research on the needs and preferences of patients with chronic pain in relation to eHealth interventions is scarce. Eliciting user input in the development of eHealth interventions may be a crucial step toward developing meaningful interventions for patients for potentially improving treatment outcomes. OBJECTIVE: This study aimed to explore the experiences of patients with chronic pain with regard to information and communication technology, understand how an eHealth intervention can support the everyday needs and challenges of patients with chronic pain, and identify possible facilitators and barriers for patients' use of an eHealth pain management intervention. METHODS: Twenty patients living with chronic pain and five spouses participated in individual interviews. Semistructured interview guides were used to explore participants' needs, experiences, and challenges in daily life as well as their information and communication technology experiences and preferences for eHealth support interventions. Spouses were recruited and interviewed to gain additional insight into the patients' needs. The study used qualitative thematic analysis. RESULTS: The participants were generally experienced technology users and reported using apps regularly. They were mainly in favor of using an eHealth self-management intervention for chronic pain and considered it a potentially acceptable way of gathering knowledge and support for pain management. The participants expressed the need for obtaining more information and knowledge, establishing a better balance in everyday life, and receiving support for improving communication and social participation. They provided suggestions for the eHealth intervention content and functionality to address these needs. Accessibility, personalization, and usability were emphasized as important elements for an eHealth support tool. The participants described an ideal eHealth intervention as one that could be used for support and distraction from pain, at any time or in any situation, regardless of varying pain intensity and concentration capacity. CONCLUSIONS: This study provides insight into user preferences for eHealth interventions aiming to address self-management for chronic pain. Participants highlighted important factors to be considered when designing and developing eHealth interventions for self-management of chronic pain, illustrating the importance and benefit of including users in the development of eHealth interventions. TRIAL REGISTRATION: ClinicalTrials.gov NCT03705104; https://clinicaltrials.gov/ct2/show/NCT03705104.

    Original languageEnglish
    Pages (from-to)e13205
    JournalJournal of medical internet research
    Volume21
    Issue number4
    DOIs
    Publication statusPublished - 1 Apr 2019

    Fingerprint

    Pain Management
    Chronic Pain
    Health
    Self Care
    Communication
    Technology
    Spouses
    Interviews
    Social Participation
    Pain
    Patient Preference

    Keywords

    • chronic pain
    • eHealth
    • intervention development
    • qualitative methods
    • self-management
    • user-centered design

    Cite this

    Ledel Solem, I. K., Varsi, C., Eide, H., Kristjansdottir, O. B., Mirkovic, J., Børøsund, E., ... Solberg Nes, L. (2019). Patients' Needs and Requirements for eHealth Pain Management Interventions: Qualitative Study. Journal of medical internet research, 21(4), e13205. https://doi.org/10.2196/13205
    Ledel Solem, Ingrid Konstanse ; Varsi, Cecilie ; Eide, Hilde ; Kristjansdottir, Olöf Birna ; Mirkovic, Jelena ; Børøsund, Elin ; Haaland-Øverby, Mette ; Heldal, Karina ; Schreurs, Karlein Mg ; Waxenberg, Lori B. ; Weiss, Karen Elizabeth ; Morrison, Eleshia J. ; Solberg Nes, Lise. / Patients' Needs and Requirements for eHealth Pain Management Interventions : Qualitative Study. In: Journal of medical internet research. 2019 ; Vol. 21, No. 4. pp. e13205.
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    abstract = "BACKGROUND: A growing body of evidence supports the potential effectiveness of electronic health (eHealth) interventions in managing chronic pain. However, research on the needs and preferences of patients with chronic pain in relation to eHealth interventions is scarce. Eliciting user input in the development of eHealth interventions may be a crucial step toward developing meaningful interventions for patients for potentially improving treatment outcomes. OBJECTIVE: This study aimed to explore the experiences of patients with chronic pain with regard to information and communication technology, understand how an eHealth intervention can support the everyday needs and challenges of patients with chronic pain, and identify possible facilitators and barriers for patients' use of an eHealth pain management intervention. METHODS: Twenty patients living with chronic pain and five spouses participated in individual interviews. Semistructured interview guides were used to explore participants' needs, experiences, and challenges in daily life as well as their information and communication technology experiences and preferences for eHealth support interventions. Spouses were recruited and interviewed to gain additional insight into the patients' needs. The study used qualitative thematic analysis. RESULTS: The participants were generally experienced technology users and reported using apps regularly. They were mainly in favor of using an eHealth self-management intervention for chronic pain and considered it a potentially acceptable way of gathering knowledge and support for pain management. The participants expressed the need for obtaining more information and knowledge, establishing a better balance in everyday life, and receiving support for improving communication and social participation. They provided suggestions for the eHealth intervention content and functionality to address these needs. Accessibility, personalization, and usability were emphasized as important elements for an eHealth support tool. The participants described an ideal eHealth intervention as one that could be used for support and distraction from pain, at any time or in any situation, regardless of varying pain intensity and concentration capacity. CONCLUSIONS: This study provides insight into user preferences for eHealth interventions aiming to address self-management for chronic pain. Participants highlighted important factors to be considered when designing and developing eHealth interventions for self-management of chronic pain, illustrating the importance and benefit of including users in the development of eHealth interventions. TRIAL REGISTRATION: ClinicalTrials.gov NCT03705104; https://clinicaltrials.gov/ct2/show/NCT03705104.",
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    Ledel Solem, IK, Varsi, C, Eide, H, Kristjansdottir, OB, Mirkovic, J, Børøsund, E, Haaland-Øverby, M, Heldal, K, Schreurs, KM, Waxenberg, LB, Weiss, KE, Morrison, EJ & Solberg Nes, L 2019, 'Patients' Needs and Requirements for eHealth Pain Management Interventions: Qualitative Study' Journal of medical internet research, vol. 21, no. 4, pp. e13205. https://doi.org/10.2196/13205

    Patients' Needs and Requirements for eHealth Pain Management Interventions : Qualitative Study. / Ledel Solem, Ingrid Konstanse; Varsi, Cecilie; Eide, Hilde; Kristjansdottir, Olöf Birna; Mirkovic, Jelena; Børøsund, Elin; Haaland-Øverby, Mette; Heldal, Karina; Schreurs, Karlein Mg; Waxenberg, Lori B.; Weiss, Karen Elizabeth; Morrison, Eleshia J.; Solberg Nes, Lise (Corresponding Author).

    In: Journal of medical internet research, Vol. 21, No. 4, 01.04.2019, p. e13205.

    Research output: Contribution to journalArticleAcademicpeer-review

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    T2 - Qualitative Study

    AU - Ledel Solem, Ingrid Konstanse

    AU - Varsi, Cecilie

    AU - Eide, Hilde

    AU - Kristjansdottir, Olöf Birna

    AU - Mirkovic, Jelena

    AU - Børøsund, Elin

    AU - Haaland-Øverby, Mette

    AU - Heldal, Karina

    AU - Schreurs, Karlein Mg

    AU - Waxenberg, Lori B.

    AU - Weiss, Karen Elizabeth

    AU - Morrison, Eleshia J.

    AU - Solberg Nes, Lise

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    N2 - BACKGROUND: A growing body of evidence supports the potential effectiveness of electronic health (eHealth) interventions in managing chronic pain. However, research on the needs and preferences of patients with chronic pain in relation to eHealth interventions is scarce. Eliciting user input in the development of eHealth interventions may be a crucial step toward developing meaningful interventions for patients for potentially improving treatment outcomes. OBJECTIVE: This study aimed to explore the experiences of patients with chronic pain with regard to information and communication technology, understand how an eHealth intervention can support the everyday needs and challenges of patients with chronic pain, and identify possible facilitators and barriers for patients' use of an eHealth pain management intervention. METHODS: Twenty patients living with chronic pain and five spouses participated in individual interviews. Semistructured interview guides were used to explore participants' needs, experiences, and challenges in daily life as well as their information and communication technology experiences and preferences for eHealth support interventions. Spouses were recruited and interviewed to gain additional insight into the patients' needs. The study used qualitative thematic analysis. RESULTS: The participants were generally experienced technology users and reported using apps regularly. They were mainly in favor of using an eHealth self-management intervention for chronic pain and considered it a potentially acceptable way of gathering knowledge and support for pain management. The participants expressed the need for obtaining more information and knowledge, establishing a better balance in everyday life, and receiving support for improving communication and social participation. They provided suggestions for the eHealth intervention content and functionality to address these needs. Accessibility, personalization, and usability were emphasized as important elements for an eHealth support tool. The participants described an ideal eHealth intervention as one that could be used for support and distraction from pain, at any time or in any situation, regardless of varying pain intensity and concentration capacity. CONCLUSIONS: This study provides insight into user preferences for eHealth interventions aiming to address self-management for chronic pain. Participants highlighted important factors to be considered when designing and developing eHealth interventions for self-management of chronic pain, illustrating the importance and benefit of including users in the development of eHealth interventions. TRIAL REGISTRATION: ClinicalTrials.gov NCT03705104; https://clinicaltrials.gov/ct2/show/NCT03705104.

    AB - BACKGROUND: A growing body of evidence supports the potential effectiveness of electronic health (eHealth) interventions in managing chronic pain. However, research on the needs and preferences of patients with chronic pain in relation to eHealth interventions is scarce. Eliciting user input in the development of eHealth interventions may be a crucial step toward developing meaningful interventions for patients for potentially improving treatment outcomes. OBJECTIVE: This study aimed to explore the experiences of patients with chronic pain with regard to information and communication technology, understand how an eHealth intervention can support the everyday needs and challenges of patients with chronic pain, and identify possible facilitators and barriers for patients' use of an eHealth pain management intervention. METHODS: Twenty patients living with chronic pain and five spouses participated in individual interviews. Semistructured interview guides were used to explore participants' needs, experiences, and challenges in daily life as well as their information and communication technology experiences and preferences for eHealth support interventions. Spouses were recruited and interviewed to gain additional insight into the patients' needs. The study used qualitative thematic analysis. RESULTS: The participants were generally experienced technology users and reported using apps regularly. They were mainly in favor of using an eHealth self-management intervention for chronic pain and considered it a potentially acceptable way of gathering knowledge and support for pain management. The participants expressed the need for obtaining more information and knowledge, establishing a better balance in everyday life, and receiving support for improving communication and social participation. They provided suggestions for the eHealth intervention content and functionality to address these needs. Accessibility, personalization, and usability were emphasized as important elements for an eHealth support tool. The participants described an ideal eHealth intervention as one that could be used for support and distraction from pain, at any time or in any situation, regardless of varying pain intensity and concentration capacity. CONCLUSIONS: This study provides insight into user preferences for eHealth interventions aiming to address self-management for chronic pain. Participants highlighted important factors to be considered when designing and developing eHealth interventions for self-management of chronic pain, illustrating the importance and benefit of including users in the development of eHealth interventions. TRIAL REGISTRATION: ClinicalTrials.gov NCT03705104; https://clinicaltrials.gov/ct2/show/NCT03705104.

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    Ledel Solem IK, Varsi C, Eide H, Kristjansdottir OB, Mirkovic J, Børøsund E et al. Patients' Needs and Requirements for eHealth Pain Management Interventions: Qualitative Study. Journal of medical internet research. 2019 Apr 1;21(4):e13205. https://doi.org/10.2196/13205