Piloting a generic cancer consumer quality index for cancer patients in European countries

A. Wind, Jana Heerink, Herman Sixma, Pietro Presti, Claudio Lombardo, Willem H. van Harten

Research output: Contribution to journalMeeting AbstractAcademic

Abstract

Background: Across health care systems, patient satisfaction has become an increasing concern over the past decades. Based on the Consumer Quality Index method(founded on Consumer Assessment of Healthcare Providers and Systems) a questionnaire was recently developed for Dutch cancer patients. As a next step, this study aimed to adapt and pilot this questionnaire for international comparison of cancer patients experience and satisfaction with care in 6 European countries; the European Cancer Consumer Quality Index (ECCQI). Methods: Firstly an already existing CQI for cancer patients was adapted for international use. A minimum of 100 patients per site were surveyed through convenience sampling. The CQI was translated into the local language at the participating pilot sites using cross-translation. Data from 7 pilot sites in 6 countries was collected through an online and paper based survey and analyzed with SPSS. Reliability was tested by calculating Cronbach’s alpha and validity by means of cognitive interviews. To measure whether the level of patient activation was a confounding factor, the Patient Activation Measure (PAM) was used. In order to examine to what extent the results of the ECCQI pilot are influenced by national cultural an explorative study using Hofstede’s cultural dimensions theory was applied. Demographic factors were compared as possible con-founders. Results: A total of 685 patients from six European countries filled the questionnaire. Cronbach’s alpha was good or satisfactory in 8 out of 10 categories. Patient satisfaction was scored very similar between the countries (3.27 – 3.46 on a scale from 1 to 4). Age, gender and level of activation were factors that had an influence on the outcomes as well as cultural differences. The results of the PAM show that respondents with a high level of activation have a tendency to score higher. Conclusions: This European Cancer Consumer Quality Index showed promising scores on reliability and a good internal validity. The ECCQI is up to our knowledge the first to measure and compare experiences and satisfaction of cancer patients on an international level. This ECCQI may enable healthcare providers to improve the quality of cancer care.
Original languageEnglish
Article numbere18163
JournalJournal of clinical oncology
Volume34
Issue number15S
DOIs
Publication statusPublished - 2016

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Neoplasms
Patient Satisfaction
Patient Participation
Health Personnel
Delivery of Health Care
Quality of Health Care
Language
Demography
Surveys and Questionnaires
Interviews

Cite this

Wind, A. ; Heerink, Jana ; Sixma, Herman ; Presti, Pietro ; Lombardo, Claudio ; van Harten, Willem H. / Piloting a generic cancer consumer quality index for cancer patients in European countries. In: Journal of clinical oncology. 2016 ; Vol. 34, No. 15S.
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abstract = "Background: Across health care systems, patient satisfaction has become an increasing concern over the past decades. Based on the Consumer Quality Index method(founded on Consumer Assessment of Healthcare Providers and Systems) a questionnaire was recently developed for Dutch cancer patients. As a next step, this study aimed to adapt and pilot this questionnaire for international comparison of cancer patients experience and satisfaction with care in 6 European countries; the European Cancer Consumer Quality Index (ECCQI). Methods: Firstly an already existing CQI for cancer patients was adapted for international use. A minimum of 100 patients per site were surveyed through convenience sampling. The CQI was translated into the local language at the participating pilot sites using cross-translation. Data from 7 pilot sites in 6 countries was collected through an online and paper based survey and analyzed with SPSS. Reliability was tested by calculating Cronbach’s alpha and validity by means of cognitive interviews. To measure whether the level of patient activation was a confounding factor, the Patient Activation Measure (PAM) was used. In order to examine to what extent the results of the ECCQI pilot are influenced by national cultural an explorative study using Hofstede’s cultural dimensions theory was applied. Demographic factors were compared as possible con-founders. Results: A total of 685 patients from six European countries filled the questionnaire. Cronbach’s alpha was good or satisfactory in 8 out of 10 categories. Patient satisfaction was scored very similar between the countries (3.27 – 3.46 on a scale from 1 to 4). Age, gender and level of activation were factors that had an influence on the outcomes as well as cultural differences. The results of the PAM show that respondents with a high level of activation have a tendency to score higher. Conclusions: This European Cancer Consumer Quality Index showed promising scores on reliability and a good internal validity. The ECCQI is up to our knowledge the first to measure and compare experiences and satisfaction of cancer patients on an international level. This ECCQI may enable healthcare providers to improve the quality of cancer care.",
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Piloting a generic cancer consumer quality index for cancer patients in European countries. / Wind, A.; Heerink, Jana; Sixma, Herman; Presti, Pietro; Lombardo, Claudio; van Harten, Willem H.

In: Journal of clinical oncology, Vol. 34, No. 15S, e18163, 2016.

Research output: Contribution to journalMeeting AbstractAcademic

TY - JOUR

T1 - Piloting a generic cancer consumer quality index for cancer patients in European countries

AU - Wind, A.

AU - Heerink, Jana

AU - Sixma, Herman

AU - Presti, Pietro

AU - Lombardo, Claudio

AU - van Harten, Willem H.

PY - 2016

Y1 - 2016

N2 - Background: Across health care systems, patient satisfaction has become an increasing concern over the past decades. Based on the Consumer Quality Index method(founded on Consumer Assessment of Healthcare Providers and Systems) a questionnaire was recently developed for Dutch cancer patients. As a next step, this study aimed to adapt and pilot this questionnaire for international comparison of cancer patients experience and satisfaction with care in 6 European countries; the European Cancer Consumer Quality Index (ECCQI). Methods: Firstly an already existing CQI for cancer patients was adapted for international use. A minimum of 100 patients per site were surveyed through convenience sampling. The CQI was translated into the local language at the participating pilot sites using cross-translation. Data from 7 pilot sites in 6 countries was collected through an online and paper based survey and analyzed with SPSS. Reliability was tested by calculating Cronbach’s alpha and validity by means of cognitive interviews. To measure whether the level of patient activation was a confounding factor, the Patient Activation Measure (PAM) was used. In order to examine to what extent the results of the ECCQI pilot are influenced by national cultural an explorative study using Hofstede’s cultural dimensions theory was applied. Demographic factors were compared as possible con-founders. Results: A total of 685 patients from six European countries filled the questionnaire. Cronbach’s alpha was good or satisfactory in 8 out of 10 categories. Patient satisfaction was scored very similar between the countries (3.27 – 3.46 on a scale from 1 to 4). Age, gender and level of activation were factors that had an influence on the outcomes as well as cultural differences. The results of the PAM show that respondents with a high level of activation have a tendency to score higher. Conclusions: This European Cancer Consumer Quality Index showed promising scores on reliability and a good internal validity. The ECCQI is up to our knowledge the first to measure and compare experiences and satisfaction of cancer patients on an international level. This ECCQI may enable healthcare providers to improve the quality of cancer care.

AB - Background: Across health care systems, patient satisfaction has become an increasing concern over the past decades. Based on the Consumer Quality Index method(founded on Consumer Assessment of Healthcare Providers and Systems) a questionnaire was recently developed for Dutch cancer patients. As a next step, this study aimed to adapt and pilot this questionnaire for international comparison of cancer patients experience and satisfaction with care in 6 European countries; the European Cancer Consumer Quality Index (ECCQI). Methods: Firstly an already existing CQI for cancer patients was adapted for international use. A minimum of 100 patients per site were surveyed through convenience sampling. The CQI was translated into the local language at the participating pilot sites using cross-translation. Data from 7 pilot sites in 6 countries was collected through an online and paper based survey and analyzed with SPSS. Reliability was tested by calculating Cronbach’s alpha and validity by means of cognitive interviews. To measure whether the level of patient activation was a confounding factor, the Patient Activation Measure (PAM) was used. In order to examine to what extent the results of the ECCQI pilot are influenced by national cultural an explorative study using Hofstede’s cultural dimensions theory was applied. Demographic factors were compared as possible con-founders. Results: A total of 685 patients from six European countries filled the questionnaire. Cronbach’s alpha was good or satisfactory in 8 out of 10 categories. Patient satisfaction was scored very similar between the countries (3.27 – 3.46 on a scale from 1 to 4). Age, gender and level of activation were factors that had an influence on the outcomes as well as cultural differences. The results of the PAM show that respondents with a high level of activation have a tendency to score higher. Conclusions: This European Cancer Consumer Quality Index showed promising scores on reliability and a good internal validity. The ECCQI is up to our knowledge the first to measure and compare experiences and satisfaction of cancer patients on an international level. This ECCQI may enable healthcare providers to improve the quality of cancer care.

U2 - 10.1200/JCO.2016.34.15\_suppl.e18163

DO - 10.1200/JCO.2016.34.15\_suppl.e18163

M3 - Meeting Abstract

VL - 34

JO - Journal of clinical oncology

JF - Journal of clinical oncology

SN - 0732-183X

IS - 15S

M1 - e18163

ER -