Towards a toolkit to empower young autistic adults: Using grounded theory to analyze ten design case studies

Niels van Huizen; Thijs Waardenburg; Nathalie Overdevest; Jelle van Dijk; Wouter Staal; Mascha C. van der Voort

doi:10.21606/drs.2022.432

Towards a toolkit to empower young autistic adults: Using grounded theory to analyze ten design case studies

Niels van Huizen, Thijs Waardenburg, Nathalie Overdevest, Jelle van Dijk, Wouter Staal, Mascha C. van der Voort

Research output: Contribution to conference › Paper › peer-review

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Abstract

Assistive technologies (ATs) are increasingly proposed to support young autistic individuals (YAAs) in daily life. Yet, the uptake of these technologies remains
limited. Most ATs are designed for and by non-autistic people, which makes them less usable for YAAs. Moreover, ATs specifically designed for YAAs are often part of formal therapy or training and typically aim to mitigate and rectify ‘problematic’ autistic behavior. In the research project Design Your Life, we are working with YAAs to develop a co-design toolkit that will help them create a personalized environment to support their independence. By now, we have completed ten design case studies, each deploying a different version of the toolkit. In this paper, we report on the insights that we gained from these case studies, for which we used a grounded theory approach. In total, we identified ten categories of knowledge that will inform the development of a single, final toolkit.

Original language	English
Pages	1-21
Number of pages	21
DOIs	https://doi.org/10.21606/drs.2022.432
Publication status	Published - 2022
Event	Design Research Society Conference, DRS 2022 - Bilbao, Spain Duration: 25 Jun 2022 → 3 Jul 2022 https://www.drs2022.org

Conference

Conference	Design Research Society Conference, DRS 2022
Country/Territory	Spain
City	Bilbao
Period	25/06/22 → 3/07/22
Internet address	https://www.drs2022.org

Keywords

Design Your Life
Grounded Theory
Research-through-design
co-design

Access to Document

10.21606/drs.2022.432Licence: CC BY-NC

Towards a toolkit to empower young autistic adults_ Using groundeFinal published version, 4.36 MBLicence: CC BY-NC

Research data / data set associated with the PhD research/dissertation of Johannes Cornelis van Huizen, entitled "Design Your Life - Bringing the Autistic Lifeworld to Supportive Technology Design"
van Huizen, J. C. (Creator), van Dijk, J. (Project Leader), van der Voort, M. C. (Supervisor) & Staal, W. (Supervisor), Areda (University of Twente), 7 Nov 2024
https://areda.utsp.utwente.nl:9000/et-hcd/PhD_Thesis_Archive_vHuizen.7z
Dataset

Cite this

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title = "Towards a toolkit to empower young autistic adults: Using grounded theory to analyze ten design case studies",

abstract = "Assistive technologies (ATs) are increasingly proposed to support young autistic individuals (YAAs) in daily life. Yet, the uptake of these technologies remainslimited. Most ATs are designed for and by non-autistic people, which makes them less usable for YAAs. Moreover, ATs specifically designed for YAAs are often part of formal therapy or training and typically aim to mitigate and rectify {\textquoteleft}problematic{\textquoteright} autistic behavior. In the research project Design Your Life, we are working with YAAs to develop a co-design toolkit that will help them create a personalized environment to support their independence. By now, we have completed ten design case studies, each deploying a different version of the toolkit. In this paper, we report on the insights that we gained from these case studies, for which we used a grounded theory approach. In total, we identified ten categories of knowledge that will inform the development of a single, final toolkit. ",

keywords = "Design Your Life, Grounded Theory, Research-through-design, co-design",

author = "{van Huizen}, Niels and Thijs Waardenburg and Nathalie Overdevest and {van Dijk}, Jelle and Wouter Staal and {van der Voort}, {Mascha C.}",

note = "Niels van Huizen is doctoral researcher at the University of Twente. His research interest lies in the development of assistive technologies that connect well to the way autistic individuals make sense of the world. Thijs Waardenburg is doctoral researcher at the HAN University of Applied Sciences. He is committed to making design thinking an integral part of professional care for young autistic adults. Nathalie Overdevest is junior researcher at the University of Twente. Her research interests lie in the development and implementation of co-design toolkits for specific users. Jelle van Dijk is assistant professor of Embodied Interaction at the University of Twente. He works on the research and design of empowering technologies for autistic individuals. Wouter Staal is full professor in Child- and adolescent psychiatry, RadboudUMC Nijmegen and professor by special appointment of Autism Spectrum Disorders at the University of Leiden. His research interests lie in the neurobiology and neurocognition of autism. Mascha van der Voort is full professor Human Centred Design at the University of Twente. Her research focuses on design approaches and tools that enable all types of stakeholders to actively engage and participate in collaboratively exploring and defining potential futures. ; Design Research Society Conference, DRS 2022 ; Conference date: 25-06-2022 Through 03-07-2022",

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doi = "10.21606/drs.2022.432",

language = "English",

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AU - Overdevest, Nathalie

AU - van Dijk, Jelle

AU - Staal, Wouter

AU - van der Voort, Mascha C.

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Towards a toolkit to empower young autistic adults: Using grounded theory to analyze ten design case studies

Abstract

Conference

Keywords

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Datasets

Research data / data set associated with the PhD research/dissertation of Johannes Cornelis van Huizen, entitled "Design Your Life - Bringing the Autistic Lifeworld to Supportive Technology Design"

Cite this