Use of Internet in Adolescents and Young Adults with JIA

Philomine A. van Pelt, Constance H.C. Drossaert, A.A. Kruize, Radboud J.E.M. Dolhain, Nico Wulffraat

    Research output: Contribution to journalMeeting AbstractOther research output

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    Abstract

    Background/Purpose: Internet-use is increasing since it is an efficient way to find information. Information obtained via Health Related Internet (HRI) sites, or online peer support groups might increase knowledge and self-management in adolescents and young adults with Juvenile Idiopathic Arthritis (JIA). This study evaluates the frequency of use and perceived relevance of HRI use and its association with demographic, disease-related and psycho-social variables.

    Methods: In a cross-sectional study, all consecutive JIA patients from the outpatient clinic (age 10 – 27 years) who gave informed consent were asked to complete a self-reported questionnaire. Frequency of using HRI-sites (regarding information about JIA, medication-use and aspects of JIA related to social life) as well as having online contact with fellow patients were evaluated. Perceived relevance of HRI use and contact with fellow patients were also investigated. Demographic variables, disease activity, medication and emotional behavior and coping were assessed as possible predictors.

    Results: 142 patients were included and 98% had access to internet. 71% had used internet to search general information on JIA, but specific topics such as medication, were less searched for (6–35%). Most favorite sites to look for information were www.reumafonds.nl (Dutch Arthritis Foundation; 20%); www.google.com (16%); www.jong-en-reuma.nl (UMCU hospital site for rheumatic diseases; 14%) and www.printo.it (Pediatric Rheumatology European Society information site; 3%). One in four adolescents had ever visited a forum or had online contact with peers. Most favorite discussion for a were www.reumaforum.nl (peer support for general rheumatic diseases; 14%); www.jeugdreuma.com (parents of children support forum; 5%) and www.Youth-R-Well.com (peer support information and forum for 16–30 year old patients; 5%). Whereas most had used the internet to find information about JIA, the perceived relevance of HRI-sites and of opportunities for online peer contact was rated low (medians respectively 2,0 and 1,0 on a scale 0–10). Female gender was positively associated with HRI use (P0.01), other demographic and disease related factors were not associated with HRI use. Coping styles “confrontation” and “reassuring thoughts” were associated with increased HRI use, but only in males. Internalizing and externalizing problem behavior were not significantly associated.

    Conclusion: Frequency of Health Related Internet use in young people with JIA was less than expected and considered of low relevance. Besides female gender no demographic and disease related factors were associated. HRI in present form cannot replace regular information as an additional source to increase knowledge.
    Original languageEnglish
    Article number107
    Pages (from-to)S46-S46
    Number of pages1
    JournalArthritis & rheumatology
    Volume66
    Issue number10 (Supplement)
    Publication statusPublished - 17 Sep 2014
    EventACR/AHRP Annual Scientific Meeting 2014 - Boston Convention Center, Boston, United States
    Duration: 15 Nov 201419 Nov 2014

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    Juvenile Arthritis
    Internet
    Young Adult
    Health
    Demography
    Rheumatic Diseases
    Knowledge Management
    Peer Group
    Self-Help Groups
    Psychological Adaptation
    Rheumatology
    Self Care
    Ambulatory Care Facilities
    Informed Consent
    Arthritis

    Cite this

    van Pelt, P. A., Drossaert, C. H. C., Kruize, A. A., Dolhain, R. J. E. M., & Wulffraat, N. (2014). Use of Internet in Adolescents and Young Adults with JIA. Arthritis & rheumatology, 66(10 (Supplement)), S46-S46. [107].
    van Pelt, Philomine A. ; Drossaert, Constance H.C. ; Kruize, A.A. ; Dolhain, Radboud J.E.M. ; Wulffraat, Nico. / Use of Internet in Adolescents and Young Adults with JIA. In: Arthritis & rheumatology. 2014 ; Vol. 66, No. 10 (Supplement). pp. S46-S46.
    @article{4b486983711241ef90edc75299bc41ca,
    title = "Use of Internet in Adolescents and Young Adults with JIA",
    abstract = "Background/Purpose: Internet-use is increasing since it is an efficient way to find information. Information obtained via Health Related Internet (HRI) sites, or online peer support groups might increase knowledge and self-management in adolescents and young adults with Juvenile Idiopathic Arthritis (JIA). This study evaluates the frequency of use and perceived relevance of HRI use and its association with demographic, disease-related and psycho-social variables.Methods: In a cross-sectional study, all consecutive JIA patients from the outpatient clinic (age 10 – 27 years) who gave informed consent were asked to complete a self-reported questionnaire. Frequency of using HRI-sites (regarding information about JIA, medication-use and aspects of JIA related to social life) as well as having online contact with fellow patients were evaluated. Perceived relevance of HRI use and contact with fellow patients were also investigated. Demographic variables, disease activity, medication and emotional behavior and coping were assessed as possible predictors.Results: 142 patients were included and 98{\%} had access to internet. 71{\%} had used internet to search general information on JIA, but specific topics such as medication, were less searched for (6–35{\%}). Most favorite sites to look for information were www.reumafonds.nl (Dutch Arthritis Foundation; 20{\%}); www.google.com (16{\%}); www.jong-en-reuma.nl (UMCU hospital site for rheumatic diseases; 14{\%}) and www.printo.it (Pediatric Rheumatology European Society information site; 3{\%}). One in four adolescents had ever visited a forum or had online contact with peers. Most favorite discussion for a were www.reumaforum.nl (peer support for general rheumatic diseases; 14{\%}); www.jeugdreuma.com (parents of children support forum; 5{\%}) and www.Youth-R-Well.com (peer support information and forum for 16–30 year old patients; 5{\%}). Whereas most had used the internet to find information about JIA, the perceived relevance of HRI-sites and of opportunities for online peer contact was rated low (medians respectively 2,0 and 1,0 on a scale 0–10). Female gender was positively associated with HRI use (P0.01), other demographic and disease related factors were not associated with HRI use. Coping styles “confrontation” and “reassuring thoughts” were associated with increased HRI use, but only in males. Internalizing and externalizing problem behavior were not significantly associated.Conclusion: Frequency of Health Related Internet use in young people with JIA was less than expected and considered of low relevance. Besides female gender no demographic and disease related factors were associated. HRI in present form cannot replace regular information as an additional source to increase knowledge.",
    author = "{van Pelt}, {Philomine A.} and Drossaert, {Constance H.C.} and A.A. Kruize and Dolhain, {Radboud J.E.M.} and Nico Wulffraat",
    year = "2014",
    month = "9",
    day = "17",
    language = "English",
    volume = "66",
    pages = "S46--S46",
    journal = "Arthritis & rheumatology",
    issn = "2326-5191",
    publisher = "Wiley",
    number = "10 (Supplement)",

    }

    van Pelt, PA, Drossaert, CHC, Kruize, AA, Dolhain, RJEM & Wulffraat, N 2014, 'Use of Internet in Adolescents and Young Adults with JIA', Arthritis & rheumatology, vol. 66, no. 10 (Supplement), 107, pp. S46-S46.

    Use of Internet in Adolescents and Young Adults with JIA. / van Pelt, Philomine A.; Drossaert, Constance H.C.; Kruize, A.A.; Dolhain, Radboud J.E.M.; Wulffraat, Nico.

    In: Arthritis & rheumatology, Vol. 66, No. 10 (Supplement), 107, 17.09.2014, p. S46-S46.

    Research output: Contribution to journalMeeting AbstractOther research output

    TY - JOUR

    T1 - Use of Internet in Adolescents and Young Adults with JIA

    AU - van Pelt, Philomine A.

    AU - Drossaert, Constance H.C.

    AU - Kruize, A.A.

    AU - Dolhain, Radboud J.E.M.

    AU - Wulffraat, Nico

    PY - 2014/9/17

    Y1 - 2014/9/17

    N2 - Background/Purpose: Internet-use is increasing since it is an efficient way to find information. Information obtained via Health Related Internet (HRI) sites, or online peer support groups might increase knowledge and self-management in adolescents and young adults with Juvenile Idiopathic Arthritis (JIA). This study evaluates the frequency of use and perceived relevance of HRI use and its association with demographic, disease-related and psycho-social variables.Methods: In a cross-sectional study, all consecutive JIA patients from the outpatient clinic (age 10 – 27 years) who gave informed consent were asked to complete a self-reported questionnaire. Frequency of using HRI-sites (regarding information about JIA, medication-use and aspects of JIA related to social life) as well as having online contact with fellow patients were evaluated. Perceived relevance of HRI use and contact with fellow patients were also investigated. Demographic variables, disease activity, medication and emotional behavior and coping were assessed as possible predictors.Results: 142 patients were included and 98% had access to internet. 71% had used internet to search general information on JIA, but specific topics such as medication, were less searched for (6–35%). Most favorite sites to look for information were www.reumafonds.nl (Dutch Arthritis Foundation; 20%); www.google.com (16%); www.jong-en-reuma.nl (UMCU hospital site for rheumatic diseases; 14%) and www.printo.it (Pediatric Rheumatology European Society information site; 3%). One in four adolescents had ever visited a forum or had online contact with peers. Most favorite discussion for a were www.reumaforum.nl (peer support for general rheumatic diseases; 14%); www.jeugdreuma.com (parents of children support forum; 5%) and www.Youth-R-Well.com (peer support information and forum for 16–30 year old patients; 5%). Whereas most had used the internet to find information about JIA, the perceived relevance of HRI-sites and of opportunities for online peer contact was rated low (medians respectively 2,0 and 1,0 on a scale 0–10). Female gender was positively associated with HRI use (P0.01), other demographic and disease related factors were not associated with HRI use. Coping styles “confrontation” and “reassuring thoughts” were associated with increased HRI use, but only in males. Internalizing and externalizing problem behavior were not significantly associated.Conclusion: Frequency of Health Related Internet use in young people with JIA was less than expected and considered of low relevance. Besides female gender no demographic and disease related factors were associated. HRI in present form cannot replace regular information as an additional source to increase knowledge.

    AB - Background/Purpose: Internet-use is increasing since it is an efficient way to find information. Information obtained via Health Related Internet (HRI) sites, or online peer support groups might increase knowledge and self-management in adolescents and young adults with Juvenile Idiopathic Arthritis (JIA). This study evaluates the frequency of use and perceived relevance of HRI use and its association with demographic, disease-related and psycho-social variables.Methods: In a cross-sectional study, all consecutive JIA patients from the outpatient clinic (age 10 – 27 years) who gave informed consent were asked to complete a self-reported questionnaire. Frequency of using HRI-sites (regarding information about JIA, medication-use and aspects of JIA related to social life) as well as having online contact with fellow patients were evaluated. Perceived relevance of HRI use and contact with fellow patients were also investigated. Demographic variables, disease activity, medication and emotional behavior and coping were assessed as possible predictors.Results: 142 patients were included and 98% had access to internet. 71% had used internet to search general information on JIA, but specific topics such as medication, were less searched for (6–35%). Most favorite sites to look for information were www.reumafonds.nl (Dutch Arthritis Foundation; 20%); www.google.com (16%); www.jong-en-reuma.nl (UMCU hospital site for rheumatic diseases; 14%) and www.printo.it (Pediatric Rheumatology European Society information site; 3%). One in four adolescents had ever visited a forum or had online contact with peers. Most favorite discussion for a were www.reumaforum.nl (peer support for general rheumatic diseases; 14%); www.jeugdreuma.com (parents of children support forum; 5%) and www.Youth-R-Well.com (peer support information and forum for 16–30 year old patients; 5%). Whereas most had used the internet to find information about JIA, the perceived relevance of HRI-sites and of opportunities for online peer contact was rated low (medians respectively 2,0 and 1,0 on a scale 0–10). Female gender was positively associated with HRI use (P0.01), other demographic and disease related factors were not associated with HRI use. Coping styles “confrontation” and “reassuring thoughts” were associated with increased HRI use, but only in males. Internalizing and externalizing problem behavior were not significantly associated.Conclusion: Frequency of Health Related Internet use in young people with JIA was less than expected and considered of low relevance. Besides female gender no demographic and disease related factors were associated. HRI in present form cannot replace regular information as an additional source to increase knowledge.

    M3 - Meeting Abstract

    VL - 66

    SP - S46-S46

    JO - Arthritis & rheumatology

    JF - Arthritis & rheumatology

    SN - 2326-5191

    IS - 10 (Supplement)

    M1 - 107

    ER -

    van Pelt PA, Drossaert CHC, Kruize AA, Dolhain RJEM, Wulffraat N. Use of Internet in Adolescents and Young Adults with JIA. Arthritis & rheumatology. 2014 Sep 17;66(10 (Supplement)):S46-S46. 107.