Veel volwassenen met een aangeboren hartaandoening niet meer onder controle

Jeroen C. Vis; Mark J Schuuring; Enno T. van der Velde; Lia C.J.M. Engelfriet-Rijk; Irene M. Harms; Sylvia Mantels; Berto J. Bouma; Barbara J.M. Mulder

Veel volwassenen met een aangeboren hartaandoening niet meer onder controle

Translated title of the contribution: Many adults with congenital heart disease are lost to follow up

Jeroen C. Vis
, Mark J Schuuring
, Enno T. van der Velde
, Lia C.J.M. Engelfriet-Rijk
, Irene M. Harms
, Sylvia Mantels
, Berto J. Bouma
, Barbara J.M. Mulder

Research output: Contribution to journal › Article › Academic › peer-review

Abstract

Objective: Identification of adults with congenital heart disease (CHD) who were lost to cardiological follow-up.

Design: Cross-sectional study.
Method: Adults with CHD and not under cardiological follow-up were asked via a nationwide publicity campaign to contact the CONCOR (CONgenital CORvitia) project group.

Results: A total of 593 patients with mild (85%) to moderate-severe (15%) CHD were registered via the nationwide campaign. Of these patients, 66% were examined within 1 year by a cardiologist. Additional cardiac follow-up was necessary within 1 year in 22% of these patients. In 16% of the patients, new residual lesions were found; and in three of these patients the pulmonary valve required replacement.

Conclusion: During this comprehensive nationwide campaign it became clear that a considerable number of adults with CDH fail to receive regular cardiac care. However, after surgical correction of CHD in childhood, residual lesions are common in this population. Threatening residual lesions can be present asymptomatically. Cardiological follow-up is therefore almost always necessary, also in patients without symptoms. Patients with CHD as well as their medical care personnel need to be well informed of this.

Translated title of the contribution	Many adults with congenital heart disease are lost to follow up
Original language	Dutch
Article number	A3767
Journal	Nederlands tijdschrift voor geneeskunde
Volume	156
Publication status	Published - 2012
Externally published	Yes

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Vis, J. C., Schuuring, M. J., van der Velde, E. T., Engelfriet-Rijk, L. C. J. M., Harms, I. M., Mantels, S., Bouma, B. J., & Mulder, B. J. M. (2012). Veel volwassenen met een aangeboren hartaandoening niet meer onder controle. Nederlands tijdschrift voor geneeskunde, 156, Article A3767. https://www.ntvg.nl/artikelen/veel-volwassenen-met-een-aangeboren-hartaandoening-niet-meer-onder-controle

@article{69f66ee9bf264fdebd8be1ba7098ce51,

title = "Veel volwassenen met een aangeboren hartaandoening niet meer onder controle",

abstract = "Objective: Identification of adults with congenital heart disease (CHD) who were lost to cardiological follow-up. Design: Cross-sectional study. Method: Adults with CHD and not under cardiological follow-up were asked via a nationwide publicity campaign to contact the CONCOR (CONgenital CORvitia) project group. Results: A total of 593 patients with mild (85\%) to moderate-severe (15\%) CHD were registered via the nationwide campaign. Of these patients, 66\% were examined within 1 year by a cardiologist. Additional cardiac follow-up was necessary within 1 year in 22\% of these patients. In 16\% of the patients, new residual lesions were found; and in three of these patients the pulmonary valve required replacement. Conclusion: During this comprehensive nationwide campaign it became clear that a considerable number of adults with CDH fail to receive regular cardiac care. However, after surgical correction of CHD in childhood, residual lesions are common in this population. Threatening residual lesions can be present asymptomatically. Cardiological follow-up is therefore almost always necessary, also in patients without symptoms. Patients with CHD as well as their medical care personnel need to be well informed of this.",

author = "Vis, \{Jeroen C.\} and Schuuring, \{Mark J\} and \{van der Velde\}, \{Enno T.\} and Engelfriet-Rijk, \{Lia C.J.M.\} and Harms, \{Irene M.\} and Sylvia Mantels and Bouma, \{Berto J.\} and Mulder, \{Barbara J.M.\}",

year = "2012",

language = "Dutch",

volume = "156",

journal = "Nederlands tijdschrift voor geneeskunde",

issn = "0028-2162",

publisher = "Vereniging Nederlands Tijdschrift voor Geneeskunde",

}

TY - JOUR

T1 - Veel volwassenen met een aangeboren hartaandoening niet meer onder controle

AU - Vis, Jeroen C.

AU - Schuuring, Mark J

AU - van der Velde, Enno T.

AU - Engelfriet-Rijk, Lia C.J.M.

AU - Harms, Irene M.

AU - Mantels, Sylvia

AU - Bouma, Berto J.

AU - Mulder, Barbara J.M.

PY - 2012

Y1 - 2012

N2 - Objective: Identification of adults with congenital heart disease (CHD) who were lost to cardiological follow-up. Design: Cross-sectional study. Method: Adults with CHD and not under cardiological follow-up were asked via a nationwide publicity campaign to contact the CONCOR (CONgenital CORvitia) project group. Results: A total of 593 patients with mild (85%) to moderate-severe (15%) CHD were registered via the nationwide campaign. Of these patients, 66% were examined within 1 year by a cardiologist. Additional cardiac follow-up was necessary within 1 year in 22% of these patients. In 16% of the patients, new residual lesions were found; and in three of these patients the pulmonary valve required replacement. Conclusion: During this comprehensive nationwide campaign it became clear that a considerable number of adults with CDH fail to receive regular cardiac care. However, after surgical correction of CHD in childhood, residual lesions are common in this population. Threatening residual lesions can be present asymptomatically. Cardiological follow-up is therefore almost always necessary, also in patients without symptoms. Patients with CHD as well as their medical care personnel need to be well informed of this.

AB - Objective: Identification of adults with congenital heart disease (CHD) who were lost to cardiological follow-up. Design: Cross-sectional study. Method: Adults with CHD and not under cardiological follow-up were asked via a nationwide publicity campaign to contact the CONCOR (CONgenital CORvitia) project group. Results: A total of 593 patients with mild (85%) to moderate-severe (15%) CHD were registered via the nationwide campaign. Of these patients, 66% were examined within 1 year by a cardiologist. Additional cardiac follow-up was necessary within 1 year in 22% of these patients. In 16% of the patients, new residual lesions were found; and in three of these patients the pulmonary valve required replacement. Conclusion: During this comprehensive nationwide campaign it became clear that a considerable number of adults with CDH fail to receive regular cardiac care. However, after surgical correction of CHD in childhood, residual lesions are common in this population. Threatening residual lesions can be present asymptomatically. Cardiological follow-up is therefore almost always necessary, also in patients without symptoms. Patients with CHD as well as their medical care personnel need to be well informed of this.

M3 - Article

SN - 0028-2162

VL - 156

JO - Nederlands tijdschrift voor geneeskunde

JF - Nederlands tijdschrift voor geneeskunde

M1 - A3767

ER -

Veel volwassenen met een aangeboren hartaandoening niet meer onder controle

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