Workflow Management for Multiple Sclerosis Patients: IT and Organization

Margreet B. Michel-Verkerke, Roel W. Schuring, Ton A.M. Spil

Research output: Chapter in Book/Report/Conference proceedingConference contributionAcademic

6 Citations (Scopus)
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Patients with Multiple Sclerosis (MS) visit various healthcare providers during the course of their disease. It was suggested that IT might help to orchestrate their care provision. We have applied the USE IT-tool to get insight in the relevant problems, solutions and constraints of the MS-care and the MS care providers both in the organizational and the information technological area. There is hardly a chain of healthcare, but rather, a network in which informal communication plays an important role. This informal network worked reasonably effective, but inefficient and slow. The patient himself plays a keyrole in information exchange between care-providers. Many providers were unaware of the services that other healthcare providers could give in general or did provide to a specific patient. MS patients-count is only small for most care providers. None of the interviewed patients mentioned a lack of contacts between careproviders as a problem. They thought that lack of experience caused their major problems: insufficient and inadequate care. To improve care, we proposed a solution that combines a “short MS-protocol”, the introduction of a central coordinator of care and a Patient Relation Management (PRM) System. This is a simple web-based application that is based on agreement by the caregivers that supports routing, tracking and tracing of a MS patient and supplies the caregivers with professional guidelines, as written down in the protocol. It is likely that we would have suggested a far more complicated ICT solution if we had only analyzed the MS-care process as such, without specific consideration of the USE IT dimensions.
Original languageEnglish
Title of host publicationProceedings of the 37th Hawaii International Conference on Systems Sciences 2004, 5-8 January 2004, Big Island, Hawaii
EditorsR.H. Sprague
Place of PublicationLos Alamitos, CA
Number of pages8
ISBN (Print)0-7695-2056-1
Publication statusPublished - 2004
Event37h Annual Hawaii International Conference on Systems Sciences, HICSS 2004 - Big Island, United States
Duration: 5 Jan 20048 Jan 2004
Conference number: 37


Conference37h Annual Hawaii International Conference on Systems Sciences, HICSS 2004
Abbreviated titleHICSS
Country/TerritoryUnited States
CityBig Island


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